Lily's Brain (continued)

The girl has been perfect and healthy and acting completely normally. It has taken us a little while to sleep somewhat without thinking she is having another seizure every time she rolls over, but we are adjusting. We just can't do that. We have gotten more comfortable with the situation in which we now find ourselves. We are feeling more and more like this was a one time thing.

Yesterday, Lily had her EEG which measures her brain activity. It was a two hour test in which she and her parents were required to be sleep deprived so she could fall asleep halfway through. I kept her up past 11:00 Monday night and we got her up around 4:30 the next morning. She watched a lot of cartoons. Her appointment was not till 1:00 so we tried to keep her relatively happy but awake all morning. She did really well. No meltdowns if you can believe it. I guess she was just in shock that she was watching so many movies.

The test started with applying dozens of electrodes on her scalp. It took about 20 minutes of measuring, marking, sticking, and wrapping. She was really loopy from her lack of sleep. She tends to get loopy rather than cranky. She was very giggly, but held pretty still making random comments. "What is he doing?" "I look like transfo-mer!" After all the electrodes were applied, Tom laid down next to her, the tech went to his computer and Lily had to do little things like open and close her eyes, blow bubbles ("I'm blown' dem to the doctor!"), and watching flashing lights. She was still giggly. Then she had to relax and take a twenty minute nap.

Test done. Peel off all the stickies. "You said it wouldn't hurt!" yes, she was upset with me about that one but she admitted, "It on'y hurt a little bid." Wash off all the grease pencil and head to the other hospital campus to meet with the doctor.

As an aside, allow me to gripe about the utopia we know as Seattle. Ten bucks for parking at Swedish Medical - Cherry Hill Campus in the garage then another eight dollars at the First Hill Campus for the appointment with the neurologist. Bad enough but there is some law in Seattle that requires all parking garages to have only 50% of their spaces to be large enough to park an actual car in it. If there is space for two cars to park, they will mark it for three, therefore rendering usable for only ONE. They are marked COMPACT, of course, but you would think our Civic would fit into that category. Good thing we didn't have our van. I don't know what people do. This was a PEDIATRIC office we were going to so we must assume that people with children would need to park a vehicle in that office's parking garage. People with children do not drive Smart Cars or motorbikes. Conclusion: Seattle does not like children or the vehicles that carry them.

Test results will have to wait till tomorrow. I'm still sleepy.